Life started over

New Years Day, a new, insignificant, but much touted starting point of time for most. Everyone changes calendars, starts their annual spending accounts over, hangs out with their families, and the new year begins. We all measure time; for good or bad, we do.  We all measure our lives based on some random (or maybe scientific) timeline that started thousands of years ago. We have days, weeks, months, years – and for some, decades. In the beginning we use hours and days, we move on to months and years at some point, and then decades as we approach some point in our lives.

Ask someone how old they are, that measurement from the day they were born until their last birthday, and everyone knows it. How long have you been married? How long have you worked there? How long ago did  you graduate? And everyone knows the answers to these questions. They all know so many dates, and how long it’s been. Everyone measures their lives against some, or several, events. For the most part, happy points on that long line of life.

But with us, as with many other, it is different.

As Cynthia said a few weeks ago – life started over when she lost her son. It is the only important day, the only date that really matters anymore.  There are plenty of other dates, but this one changed everything. Everything is measured from that day on – and will be from now on, for the rest of her life, as well as for the rest of our lives.

Our timeline has a new starting point now. We no longer measure how old we are or how long we have been married – time frames that we were so proud of before. When we graduated school or how long we have worked at our current job just don’t have that sense of importance anymore. We really only keep track of one important date – when we lost our child. Everything is still measured, time keeps moving on, but we just don’t seem to care about those dates anymore. there is really only one date now.

Ask any bereaved parent “how long has it been?” Before you can even finish the sentence they have blurted out sixteen months, or three years, or seven years, or six weeks. We don’t have to think about it, we don’t have to calculate it, it is just there, all the time, on the tips of our tongues and in the forefront of our minds.

it is such a tragic day, such a tragic thing that has happened, that nothing else is as important to us – life started over on that day. Something that we loved beyond belief, someone that came from us, someone who was part of our being – was taken away.

For those of us who are lucky enough to have one or two or even three other children, or blessed with several grandchildren, we of course know their birthdays, and their special dates. But, more importantly, we know exactly how old they were when we lost our child. You could hear us say “Jack was fifteen when he lost his brother, he is now, uh…twenty one.” We know how old they were, but have to think about how old they are now.

Life also started over because we are such different people than we were before. Such a drastic change in our lives, such a shift in who we have become, this warrants a new start date. The path that we are on now, the path that fate has put us on, has a mile marker 0 where we our new journey began. Every day, every week, every year, we go further down that path, but we are never far from that mile marker 0. It is always fresh in our minds and in our hearts, and never further than a teardrop away.

Yes, we go on. Yes we get older. Yes, we remember all the good times before that date, and cherish them. But for us, especially us, our lives started over when someone was taken from us.

 

As time goes on, you forget us…

I was at the funeral of a friend and client of mine several months ago; he passed in his mid-fifties, suddenly and unexpectedly.  During the eulogies, one of his siblings spoke about his wife and their love for each other. He spoke about the family and the friends that Ray had during his lifetime and how they meant to him, and how close they were. This was pretty much expected. Then he went off on a tangent and spoke of something unexpected.

After telling us how much Ray’s friends and family meant to him, and all that they had done together, he asked us, all of us, not to forget his wife – his widow that he left behind. He said that of course we will all be there for her in the upcoming days and weeks and months. But as time goes on, we will move on, forget about contacting her, and make other friends. He asked that we each take a personal vow to stay in touch with her, to take her to lunch some time, to not forget about the friendship in the upcoming year, or two or five. Everyone in the room, everyone at the funeral, was an important part of their life and he implored us not to forget her as time goes on. As a widow with her children grown that have moved out of the house and have their own lives, she is all alone now. All she has is her friends – us – and we had to be there for her.

We all agreed and we all understood.

“I don’t hear from my friends anymore”
“My friends are not comfortable around me anymore”
“I don’t have anyone to go out to lunch with”

I hear that all the time in my bereavement groups. It’s not just from those who lost children. It’s from widows and widowers. Children who lost their parents. And people who lost a close friend.

I saw it first hand when my father passed away when I was sixteen. My parents had a lot of close friends. They went out every weekend with friends. They belonged to groups and clubs. They were very active. But that all stopped when my mom lost her life-partner. Yes, of course some of her friends stayed in her life, and they are there now. But more than not , most of them disappeared over a rather short period of time from her life. She made new friends, she met new people, and she moved on. But I know it hurt her, and it hurt us, the so-called friends who disappeared soon after sitting Shiva. This is an all to common scenario.

I know it is hard to stay in touch with someone who you no longer have much in common with. Or someone who it hurts for you to have lunch with because of the memories. Or the spouse of a dear friend who you were never really close with to start with. Or an in-law that the bonds of the family no longer exist. I have been there as well.

But think of it from the other side. Ray’s wife is now alone. She can use the occasional phone call or e-mail. She could use the occasional lunch or dinner date. She could use the shoulder to cry on, or the friend to recall the happier times. She needs friends – her old friends.

The same is try for the bereaved parent. You don’t know how much it means to us to receive a text or an e-mail that just asks us how we are doing. The short phone call to say your thinking about us, or that Andrew was on your mind. It doesn’t take long, and it means so much.  Now I am not writing this for ourselves. Dorothy, Nicole and I have a lot of friends and family that keep in touch with us – and we really appreciate it so much. It has helped us get through this whole tragedy and kept us talking about Andrew and kept us alive. Dorothy’s still goes out with her cousins ever few months, and she needs and appreciates that. They are as much a part of her life now as they were before. It’s not about us. It is about so many others that we know, so many others that we speak to and hear from, so many others that don’t have that tight network of family and friends that we do.

We know parents who have lost their only child, and their friends just disappeared from their life. Fortunately, we do keep in touch with several of Andrew’s friends, so I know how great that feels. We know husbands who have passed and their office mates just moved on. While others stay in the widows life and help her to move on.

We have been to a few funerals in the past year or so, too many really. We hear all the time from the visitors that they are going to stay in touch, that they will call, that if the grieving needs anything, they should reach out to the visitors.  Well it doesn’t work that way. They are not going to reach out to you. They are not going to call you and ask you to take them out to lunch. They are not going to send you an e-mail and say that they are doing okay, or that they really need someone to talk to. It just isn’t the way it works. They are the one with the loss, it is way too hard for them to reach out.

It’s up to you to reach out to them. Let me say that again. It is up to you to reach out to them.

I am sure that most of us have been to a funeral a year or two ago of someone we cared for. Someone who meant a lot to us. Maybe, as in Ray’s case, someone who was a friend and a mentor to me. Or someone who lost a parent they were close with? Did you tell them you would be in touch? Did you let them know you were there for them? Did you promise to be their friend? And then, did you turn around and walk away and leave them?

I’m just saying…

Do you think it is time to reach back out to them? Do you think he/she deserves that helping hand and that soft shoulder? I know that the initial call would be hard to make after all this time. But how hard is it on your friend not to receive that call? Not to be consoled and to not feel forgotten. It’s harder on them to be left alone, and it hurts much more, than it would be for you to swallow your pride, pick up the phone, send an e-mail, send a text, and make someone feel loved and comforted.

 

Andrew was very proud of his little sister's preschool graduation. He was, and still is, very proud of everything she accomplishes in her life. He was so proud when she got accepted to play college hockey. He, sadly, never got to see her dreams realized though.

Andrew was very proud of his little sister’s preschool graduation. He was, and still is, very proud of everything she accomplishes in her life. He was so proud when she got accepted to play college hockey. He, sadly, never got to see her dreams realized though.

 

 

Nicole and Greg on my roof. The back story: We went apple picking, and to make it easier, but probably not that safe, all of the kids got to stand on the roof of my car as we drove from tree to tree to make it easier to get to the apples. No one was seriously injured so we had a very fun day.

Nicole and Greg on my roof. The back story: We went apple picking, and to make it easier, but probably not that safe, all of the kids got to stand on the roof of my car as we drove from tree to tree to make it easier to get to the apples. No one was seriously injured so we had a very fun day.

 

 

 

 

I really don't know. Maybe he is doing some Vulcan mind thing on her? or some Pokemon mind game?

I really don’t know. Maybe he is doing some Vulcan mind thing on her? or some Pokemon mind game?

Dorothy, Nicole and Andrew at a Yankees game. Although he didn't enjoy the game, he loved to spend time with mommy and Nicole. Much happier times for everyone.

Dorothy, Nicole and Andrew at a Yankees game. Although he didn’t enjoy the game, he loved to spend time with mommy and Nicole. Much happier times for everyone.

Moving

Moving. What a broad subject. Not moving on, or moving up, or moving others with your words. Just moving. Packing up everything you own, everything your family owns, your pets, your possessions, packing it all into a truck, and moving. Shutting down and leaving the home that you have known for so long and going to a new start. We all do it a few times in our lives, some more than others, others only once or twice. Sometimes we move for work, or for a larger place, or for downsizing. But where I am now, my mental and emotional place in life, moving has different meanings. Moving becomes emotional.

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Andrew’s shelves. His snowboarding glasses, his many hats and sunglasses, pictures of Daisy, the manual to his car, Jovi’s birthday gift, and so much more of him.

Every day, every single day, I visit Andrew’s room. It might be for just a moment to touch something, smile, and leave. Or it might be for a few minutes to look at his belongings, do some remembering, and then get back to my day. But every single day I go into his room – I am with him for that moment. Sometimes when i am lost, I sit on his bed and ask him for advice. I think about what he would say to me, think about what his thoughts might be. I might just think about him, about his smile, about what his life could have been. It gives me great peace and comfort to have that place I can visit. His room. His stuff. His memories. It is such a large part of my moving ahead with my life.

DSC_1377Sometimes it is sad for me to go there, sadness beyond belief and something that no one can ever put into words. But those days are getting fewer and further apart as I learn to deal with this loss. But they are still there once in a while. The days that I go in there and smile and recall the good times, recall the blessing that I had with my son for twenty one years are getting more often. I look at his guitar and think about the joy and pride he had learning to play it. It still sits on his bed where he left it. I look at his high school yearbooks and read what his friends wrote to him, and I smile. I look at his team jackets and how honored he was to wear them and be part of the teams that he was on.

Then there are the things that only those who knew Andrew would appreciate. There is an arm rest from the high school auditorium. Why would someone want that? Who knows, but Andrew had it – and was proud that he had it. There are his pads of late passes and hall passes from high school. I don’t know, but I am sure his friends know why he had them. And his sneakers – for someone who never wore shoes, he had a lot of them.

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His Ranger and Titans Jerseys, his hoodies and jeans. This is what we remember him in.

When I go in there, I connect with him. Much of his clothes are still where he left them – although cleaned, folded and put away. Some of his books, some of what he collected, some of him, is still there. And I need that, I need to know that and see that to get me through each day and to keep moving my feet forward. I can not see that day in the future where I can box it up, store it away, pack up what is left of Andrew and move away. Maybe one day it will happen, but maybe it won’t.

But for others it is different. And I understand that. For others, the site of their children’s room, seeing their empty space, seeing the toys that lay collecting dust, the clothes that will never be worn again, the books that will never be read, is just too much. The searing pain of their loss is brought back to them every time they pass that doorway. Sometimes the door is kept shut, so they do not have to see inside the bedroom. Other families keep the door open, and bear the sight of the room. Their loss is tied to that place, tied to that house, that used to be a home. For those parents, a new beginning, a new place, a fresh start, is what they need. They need new surroundings not tied to the past. Simply put –  a move.

They have to put their sons or daughters belongings away. They have to box up the memories, box up the clothes, the toys, the books, and prepare to move. They might sell the furniture, or donate it, or pass it along. But it does not go with them. It is too hard to keep it. They are downsizing, they are relocating, they are moving to a new place where the memories of raising their wonderful child do not exist.

One day they will open those boxes again and sort through what was their loved one. They might cry over a toy, a book, or a piece of clothes. But it is not an entire room of overwhelming memories. It is not the entire home where the spent so many loving years before that fateful terrible day. These tears might be of the happy times, the happy memories. These tears are the good ones that moved along with them.

Don’t be mistaken – when they moved they took their children with them. The memories, their love, all that was their child, all that they had, moved along with them, but they are moving. We never forget our children. No matter where we go, or where we stay, what we give away or what we choose to keep, our sons and daughters are always with us. But some of us have to move away and start over, while others chose to stay.

Why the difference? Why the irresistible driving force to stay put or move away? Just like all grief, just like we each handle our grief our own way – no one knows why, it just is.

This journal is written in honor of Emily, and in memory of Daniel, as a thank you for all of the parents that she has helped move ahead in their lives and all of the souls she has healed.

 

Meetings

It has been sixteen months now that we have begun this terrible, tragic journey, and almost every week, like clockwork,  Dorothy and I go to our bereavement group meetings.

We belong to a few groups.  They are all over the calendar.  One meets every other Wednesday, one meets the second and fourth Tuesday, and one meets the first Thursday. On average, we go to one meeting a week, two some weeks, and no meetings other weeks, but over the months, it all works out. Each group is very different and there is almost no overlap among members. The locations are all different–one meets around a dark brown conference room table, one in a cluster of comfy seats and couches in a church library, and one meets in a church meeting room dominated by generic 3′ x 6′ tables.  One group charges a few bucks per person per meeting, while another serves us free pizza at every meeting. One is run by a professional therapist, the others by trained group leaders. One is part of a national network of bereavement groups that holds national and local events, one is run by a local bereavement center, and one is affiliated with a local hospital. All of them so very different.

But the meetings all have one thing in common:  they are gatherings of parents–and, in a few cases, siblings–of lost children. We come together to talk about and honor our children, to talk about everything that is going on in our lives, to support others who have recently joined the group, and to come to a “safe” place. What we talk about and what we say in the group stays in the group. We sometimes share photographs of our children–we want the others to see what our beautiful son or daughter looked like. We share songs they might have written, or poems that we found that help us and might help the others, or mementos that meant a lot to someone. But we mainly talk.This is a gathering of our a special group of people. These are the people who “get it.” Even though they think they do, or as hard as they try, no one else really does.

Sometimes there is a topic that we talk about. In November and December we talked about the holidays, how they are without our children and what we do to honor our children who are not with us anymore during the holidays. In the spring we talk about new life, new beginnings, Easter and Passover: and how they relate to what we are going through.  In June we talk about graduations:  that some of our children never made, or that their friends graduated and what it means to us that our children did not walk down the aisle that year. Sometimes we talk about what we constantly are doing to honor our children and keep our relationship with them alive. Sometime we just start and can talk non-stop for ninety minutes; other times the leader has to keep us moving forward, because we all are frozen in our thoughts and pain.

If new parents come to the group for the first time, something we all know too much about, we listen patiently as they talk about their loss. Sometimes it is too raw for them to share, too soon for them to open up, and they say just a few words, tear up, cry, and they tell us to move on. We understand where they are at, we all have been there. We see them over the weeks and months come out of their painful shell, come out of their shock.  Eventually they tell us about their son or daughter. Sometimes they can’t use the word died, or passed, or lost. The first time a parent says that in front of a group is a huge realization for them. We all know why they are here, and we all know that they lost the most precious thing a parent can ever have, but the first time they say it out loud, even in a whisper, is a milestone for all of us. To this day, all  I can say is that I lost Andrew. I can’t describe it any other way.  It’s just too hard to say any other words.

Some families and parents come to the groups for years–once, maybe twice a month. Their children died five, seven, ten, or more years ago. They find peace and comfort in coming to the meetings. It is a safe place where they can go and talk about their child. They can cry openly and not be judged, they can show pictures and tell stories to people who are genuinely interested. They are never asked if they are over it yet, or whether they have moved on. They are around those people who actually know what they are going through, unfortunately. They are around their peers. They are with the other members of a club that no one wants to be in, but we are forced to be in by circumstances.

There are those who, like us, have been going for a much shorter time, maybe a year or two. We are still learning to deal with our loss. We look forward to going to the meetings, for it is our safe place, as well. We can openly cry there–we are actually expected to cry at the meetings, as most of us do at one point or another. We regularly see a few other families who lost their sons about the same time we lost Andrew. We went through the holidays for the first time together. We went through the process of picking out a headstone together, and so much more–but we went through them together with people who understood. We had people whom we could lean on over the year who were going through the exact same thing we were, and it helped us so much. We were there for them, and they were there for us.

Some people come to the group once or twice. The can tell their story, they can listen to what we have to say, but they do not return. Talking about it, or listening to others, just hurts them too much. They have to deal with their loss in a different way. We don’t know why they don’t return, they just drop out, and they are gone. But we hope that they are, in their own way, dealing with their loss and their grief. We intend to stay, for now. For another year? Two years? Five? Neither of us really knows. Do we want to be going every week in five or ten years? I don’t think so, neither does Dorothy. Will we be cured, will we be better, will we be over it? Absolutely not. But we hope to one day be at a point where we know how to deal with our loss and out pain, where we can talk about it and not cry so much, where we can help others through the pain.

We were helped by some of those parents who have been in the groups for years. A few months ago, Pam, who lost her son several years ago, gave Dorothy a little piece of paper on it that simply said “It will get better, I promise.” Dorothy was having a very tough time and this little piece of paper, these simple words from someone who had gone through the feelings and pain Dorothy was feeling now, helped her so much. Maybe one day we can help someone else in this same simple way.

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He always had a smile on his face.

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Andrew and Mom

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They enjoyed playing together all the time. he looked out for Nicole and made sure she was safe all the time.

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The second year

“You’ve made it through the first year, the worst is over.”

Every grieving parent has heard that, numerous times. Whether it be from a friend, family member, colleague, client, or customer, we have all heard it, Dorothy and I included.  It might be worded a bit differently, might be said at different times, but we have all heard it all several times. When it has been said to us, we have smiled, we have been courteous, said thank you, finished the conversation, turned and walked away. We know the person saying it has such good intentions and means it to help us, but where they draw this idea from we don’t know – and we hope they never do know our pain. We listen to what they say, make eye contact, and smile at them, but inside we cry a little more. Inside we hurt a little more. Inside we know that is the furthest thing from the truth.

Last year during Thanksgiving, we sat at the table without Andrew. It was the first holiday for which he usually came home from college. It was his senior year and all of his friends came home to their families. Nicole came home. And yet…no Andrew. We had our turkey dinner, we had desert, we talked a little, but there was nothing to be thankful for.  Our Andrew was not with us. It was the first holiday without him, the first of many. We were realizing that this was our new reality.

Then it was Hanukkah and soon after my birthday. Both very empty. Then Dorothy’s birthday, Christmas, and his twenty-second birthday, and New Year’s Eve, and Nicole’s birthday. He was not here to celebrate any of them with us. We tried to make these special days as normal as possible, we tried to be with family and friends as much as we could. We tried to celebrate in ways that we could. But it hurt. It was always the first time.

It was the first Christmas tree at grandma’s house without Andrew putting on his favorite ornaments. It was the first year Dorothy and I went holiday shopping for one child, not two. It was the first birthday in so many years that my son did not call me to wish me a happy birthday. There were no gifts for Andrew anywhere. There were no cards for him, no calls, no nothing. And it was the first time. Everything was different. Everything was hard. But we made it through that season of firsts.

There were other firsts and events as well. It was the first Mother’s Day on which my loving wife’s only son did not call her. We sat at the Passover table for the first time and he did not participate in the four questions – for the first time. We went on a small vacation over the summer, for the first time, just the three of us.

Everything we did, everything we saw, everything in that first year was a first. And it was so hard to get through them. The first this, the first that. Every time anything happened, or we did something together, we realized Andrew was not there with us this year. We realized we were alone, the three of us.

People tell us that we made it through. Of course we did. We had no choice. We had to keep our feet moving, our lives had to go on. We still had to work, Nicole still had to go to school. We placed his headstone at the end of that first year with many of our friends, Andrew’s friends, and family by our side.The first year was over.

Then in September the second year started. And people told us that we made it through the toughest times of our lives, and many said it would get better. Even though they never experienced what we are going through, and hopefully never will, they reassured us that things get better. They never experienced their child’s birthday – AFTER their child was gone. We very much appreciate people talking to us, calling and visiting us, going out to lunch or dinner with us, and helping us. Without our great friends and family that we are grateful for, that first year would have  been so much more difficult. We are very grateful for the special people in our lives. Without the conversations we have had with them, the healing conversations, the stories we share, the sympathy that they show us, we don’t know what we would have done this first year.

That first year taught us one thing – over and over again. That Andrew was gone, that he was no longer with us. We cried a lot, just about every day. We looked at pictures of Andrew every day; they are all over the house, our computers and our phones. The shock wore off after the first few months. Then the pain set in. The realization that he is gone cut deeper every day.

But now we are in our second year. And it is worse, but in a different was. Here’s why:

Through the High Holidays, Thanksgiving, birthdays, Hanukkah, and so forth, Andrew is STILL not here. We know that. But we now have to face the cold fact that he will never be with us again. Ever. He is gone…forever. He will never help us carve the Thanksgiving turkey, or ever smile when he opens his Hanukkah gifts. He will never have dinner with Uncle Roy, or go skiing with Todd and Greg. He will never again help decorate or see a Christmas tree. He is gone forever. In year three, and four, and five and for the rest of our lives, he is gone. And that hurts more than the first year when he was just not here. We went from the deep pain that he is not here, to the searing realization that he will never, ever, be here again.

Yes, the first year was difficult – missing Andrew at every holiday, birthday and family gathering. But the second year is harder. We now have to face the reality that he will never again be with us for the rest of our lives. And that hurts.

 

I could not find any places in this post to appropriately put pictured of Andrew and the family, but I think the pictures I post are an important part of each post. So here they are at the end of the post. All showing how happy Andrew was all the time.

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Apple picking – lots of fun

 

 

 

 

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Showing surprise and awe at Bubby’s 65th.

To know, or not to know

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Nothing more beautiful than snow on the mountains in Colorado.

Several years ago a good friend of mine, Robert, had a terrible brain tumor. He knew what was happening in the beginning, and knew what he had and what was wrong with him. As time wore on though, he lost much of his short-term memory, and eventually middle term memory. As long as he knew you from years past, he recognized you. When Roy and I went to visit him in the hospital, he knew us. But when Andrew joined us, Robert did not know or recognize him, although he was there visiting him just a few weeks before. Robert slowly declined as the tumor grew, and he really did not question why he was in the hospital, or what was wrong with him. He could hold a conversation with you, and talk about life, and he always seemed happy. He didn’t know how sick he was, and never questioned the tests or the radiation treatments. He eventually went home, and passed away in the shower a few months later – never knowing what was going on with his health.  Never knowing that he was so close to death for so long.

Was he lucky? I don’t know. He was dying for well over a year, and he was never sad. He never cried about it, he never thought about what he was going to miss out on in life. He didn’t cry over not getting married, or having kids, or traveling the world. He was just happy all the time, all the way to the end. He had no idea he was ill, and had no idea his days were severely limited. He was just living his life.

Is this better than knowing?

Another lifelong friend of mine, Karen, also had a brain tumor that slowly took her life over the course of several years. But she knew it from the very beginning. She looked into the eyes of her two young girls and knew she would never see them grow into lovely young women. She knew she would never see them graduate high school, go off to college, and one day get married. When I visited her we talked about life and the past. She was bed ridden for months as her body slowly deteriorated over time, and she cried. She talked to her mom and to her sister and friends to make sure that her daughters were taken care of. She was so concerned for their well being, and she wanted to make sure they had a great life – even without her in it. She wanted to make sure they went apple picking and visited Disney World. She wanted them to know all about her. Dee and I saw here a couple of days before she passed, and we talked all night with her. She knew the end was so near, she faded in and out of consciousness, but wanted to tie up so many loose ends with so many people. Her body was getting more frail by the day, but she brought out that smile and laugh every time her daughters were there.

I can only imagine what she went through those last months. What would anyone go through knowing that they are going to die soon? We all know we are going to die, and it is a part of life. But we don’t know when, and we all hope it is far, far away. We don’t prepare for it mentally, we don’t prepare for it spiritually, and we don’t talk about it. It just happens one day, for most of us.

But those of us who know they are going to leave us soon, either from cancer, or a tumor, or whatever terrible cause, what do they do? It is terrible that they are going to die, but is it a blessing that they have time? They can talk to those they love and tell them everything they want to. They can tell them stories of the past, they can tell them things they never did before. In some cases they can make peace with relatives long forgotten, and bring back family into their lives. They have time to make things right, they have time. Maybe a few days or weeks, or months, but they have time to repair the past, they have time to make amends.

Or is it a curse? Knowing your days are so numbered. Knowing you will not live your life out, you won’t grow old. Living with the stress that every day you wake up you are that much closer to the end. Going for the tests and hearing the dreaded results day after day, week after week. Watching your body as the disease slowly kills you.

Some parents who have enough time have made video-tapes for their kids to listen to. Some have written long journals to leave behind. They know they are leaving and they want to be remembered, so they do whatever they can to leave something meaningful behind. They want to leave some sort of legacy, some proof they were here on this earth and made a difference.

But as I said before – how can they mentally handle knowing that they are dying? It must be such a burden, such an unnatural thought, something that our brains were never designed for. People can really only relate to something they know, and this is something that not many of us can really comprehend – knowing our days are so limited and so finite.

Andrew was in the first group – he never knew. He never knew he was going to die so young. He never knew he would not make it to graduate college, or get married and have a family. He didn’t know how finite his days were. He made himself sushi for dinner, he watched TV, called to say goodnight to Dorothy and me, and then he just went to sleep. That was it. He passed very quietly and peacefully in the middle of the night, not knowing what he has missed out in life. Not knowing anything.

DSC00359He never let me know what to do with his car, or what to do with his snowboard – who should get it. He left his valuables just lying around in his room. His phone was charging, his computer was left on, his laptop was downloading music and videos. He had no reason to think he would not be with us in the morning. It was to be his first day of class, he bought all his books, he got his notebook ready, he even wrote in his calendar “First Day of Classes.” He didn’t know.

As I look back on this, and as I learn more about grief and suffering and pain, I am almost thankful for the way he passed – not that he passed, but the manner in which he was taken from us. Andrew was a fragile soul. He was a kind, gentle human being. He thought things out to such detail, and always questioned everything, in a positive way. He had compassion for anyone and everyone he met. He had no hate, no fear, no animosity in his life. He was happy every day – but he did not handle stress well. He loved everyone he knew, and always helped others. He had no enemies. His coaches always told us that no one ever disliked Andrew, His teachers welcomed him into their closed classrooms for lunch, just to sit and eat and listen to him talk about life. He loved to listen to others as well.

I know he never had the chance to say goodbye. He never got the chance to tell us things I am sure he was holding inside. But I am okay with that.

IF

There is just something so peaceful about this picture of Andrew.

He never had to look into our eyes and say goodbye to his mother, his sister and me. He never had to tell us those things that bothered him. He never had to hold his beloved pets and say goodbye to them, knowing he would never see them again. That would have hurt me so much more. The pain that would have caused him would have been so much, I would not have been able to bear it. And I do not think he would have been able to handle that either.

So the question is – is it better to know and have the ability to make peace, but live with the knowledge the end is near? Or is it better to just lie down and pass – oblivious to the fact that your life as we know it is about to end?

So tell me – are you thankful for the way your close ones passed? Are you at peace with the way they were taken? Or would you have liked it some other way? Of course we would all have liked it not to happen, that is a given. But it did happen to us, and we are left here to think about it for the rest of our lives.

 

 

 

Promises and Mistakes

I just left a small software conference and heard something very refreshing. The CEO/President and the Chairman opened the conference up with a pretty typical state of the company speech. What was refreshing about it was that during their opening remarks they said that over the past year they had made some mistakes, the made some misjudgments, they had stated anticipated changes and made decisions that had not come to fruition. All of the consultants there knew that already, but it was refreshing for them to say that, and to own it, it gave us a respectful perspective. We quickly moved on, now that it was dealt with, and the entire conference was very positive and successful.

CCI12082014_00000I laid down that night and thought about Andrew, like I do every night. I made him promises and told him what I was going to do during his life. Told him how I was going to raise him and protect him. Promised him the sun and the moon. Of course he was only a few days old, and probably didn’t understand much of what I said, but I still made him promises. And to make is worse, I reiterated these promises throughout his life. To stand by him and to support him throughout his life, no matter what he did, no matter how he turned out. Now I am here, alone, staring at the darkened ceiling knowing that we never fulfilled these promises. Some of them he was too young for us to fulfil. Others we just never did. While many others we did fulfil in the short time we had him.

The other part was a little harder to face. Mistakes.

Andrew – I made mistakes during your life. Some of them caused you pain, some of them made you cry, other just made me cry. Some of them were obvious, while others were only visible in hindsight. But I definitely made mistakes. All parents make mistakes, we are not perfect, and raising a child is an on-the-job learning experience. We learn as we do, and as you grow. Maybe we learned a little too slow, or a little too late.

Most parents have a lifetime though to correct their mistakes. Or at least to make right by them. They talk to their children, they discuss what happened and they move on. Their mistakes become learning experience and help them as their kids grow up. Your mom and I don’t have that chance – and it sucks.

CCI12082014_00002Most of the mistakes are small. Insignificant in the course of a lifetime. I always drove fast – and you learned by watching me from the back seat, which probably explains why you got let’s say more than one speeding ticket. I am sorry I didn’t slow down and set a better example for you. I know I upset you when I argued with someone over insignificant things, like a bad hotel room or a price discrepancy – and I tried not to when I was around you – but I did it way too often. I know it’s too late to teach you better, but you will be glad to know that I really don’t do that much anymore. You have taught me to be much more compassionate, patient, and understanding. Unfortunately too late for you to appreciate it.  But I know you know you have changed me for the better.

CCI12082014_00001In the grand scheme of your short life, I know these broken promises and mistakes are minor. I know you had a great life, I know you know you were loved and cared for and your mom and I did our best to raise you – and we are doing our best to raise Nicole. I know these mistakes were insurmountably outweighed and outnumbered but your positive experiences, and I am at peace with this. I can close my eyes and recall the good memories. But I wanted you to know that I am truly sorry for these mistakes. Hopefully one day, somehow, you can let me know you forgive me.

All parents make promises that get broken. All parent make mistakes. But it is those of us who can put them into perspective and make them relative, who can properly love our children and grieve for them unconditionally. We cannot dwell on the promises we broke, the mistakes we make, the unspoken apologies – for they are in the past. We must remember our children, remember the good, remember the love, and hold on to that as we move one foot in front of the next.

 

All of a sudden

A lot of what I write about is what I hear and what we discuss in our bereavement groups.  I take in so much in these groups, I churn it, I digest it, think about it, and when I can, I let it out and write about it. Sometimes I use the person’s name who talked about it, other times so many people mention it that I just write.

BrokenIn tonight’s meeting, Pam talked about a drive to go shopping on Route 84. She passed a pretty bad accident – ambulances, airlift helicopter, police cars, and mangled vehicles. But what caught her eye and her mind was the covered dead body on the side of the road. Obviously, someone did not survive the accident. She could not see if the person was a teenager, or a senior, or someone’s son or daughter, or mother or father. She didn’t know if the person was a reckless speeder who caused the accident, an innocent victim that was just driving along and had his/her life ended, or merely a passenger in the wrong car at the wrong time. She knew nothing – but there lie a dead body.

What we all thought, and Pam verbalized it so well, was that in a few minutes someone’s life was about to change. Someone, maybe parents, maybe a wife or a husband, maybe a son or a daughter, was about to get a devastating phone call that would forever change their life. This person laying under the blanket on the cold blacktop could have been someone’s only daughter, or someone’s father, or a husband. And the person or people left behind were going to get a call in a few minutes that will be the worst call they will ever get.

“Hello, this is Sgt Smith from the CT State Police, can I please talk to….”    And that’s it.

Right now, that person can be playing tennis, or working in his office, or at school, or on vacation somewhere having an amazing trip. They are living day-by-day, very happy with their life. But that will all end very soon. With just one call their life’s path will forever be altered.

IFMost people who see this scene look at the body and feel sorry for that person who is dead. They probably died too young. He or she was such a wonderful person with so much to live for; they were taken from this world way too early. There are so many thoughts for that person. But they are gone. They feel no pain now.  They have no grief. They are somewhere else, wherever that may be. But they are no more – they will not cry for those they left behind, they will not grieve for leaving this earth. Wherever they were going, they will not get there, whatever they were doing, will never be completed. All of a sudden they are gone.

But those they left behind. As grieving parents, most of us have received that call. We may have been at work, or at home, in the middle of the night, or on our cell phones. We have received that call. The call from some unfortunate person forced to give us the news that our child is gone. Gone forever from our lives. Each and every one of us can tell you exactly what we were doing before that call. What we had planned for that day, plans that never got completed. We were happy, we were watching TV; we were enjoying ourselves and feeling lucky to have such great lives. We were just going merrily along looking forward to so much. Then we got that call.

DSC00677As grieving parents, yes we are sorry and feel for the person lying on the side of the road, bloody, covered, forever gone. But we feel for his or her parents, we connect with them. We feel for his or her wife or husband. We feel for the children left behind. We feel for that phone call. We relate to them so much more, we empathize with them – we are them. We are the ones who received that call which changed our lives. This call that devastated the happiness within our hearts. The call that forever changed the life path we were on.

All of a sudden.

 

Causes, Passions, and Foundations.

Causes, Passions, and Foundations.

nWe all have charities, causes, benefits that we like to support. It makes us feel good. Whether it be a center for the arts, a public school foundation, a food bank, or drug prevention – most people support some cause to some degree. I think this is great. Some people put in a few hours a year to work at a fundraiser one day, while others work several hours weekly for their causes. Some people can raise hundreds of thousands of dollars just by making phone calls to their friends and business acquaintances, while others raise money ten dollars at a time for their charity. No matter what you do, no matter how much you raise, it is important to be involved with something that is meaningful to you – for it is your emotional attachment to that cause this is your motivation.  It is not your friends or colleges asking you, not your moral obligation to do something – it is how that charity and cause has affected you that drives you do be involved on some level. It is almost a visceral reaction that causes your attachment to this cause.

Like many others, I have been involved with a few charities over the years. Attended meetings, helped at golf outings, raised some money, spread the word about a specific cause, etc. But was I passionate about? Not really. I guess that is why I was involved with them for a few years, and then moved on. Like most of us do. Our kids outgrow soccer, so we stop being on the board. Our kids graduate high school so we move off the educational foundation. We get a new job so we change our charities to be in line with our new company. But we move on because there was no emotional attachment to the cause.

Unfortunately, it is the traumatic and horrible experiences of our lives that forces us to change and re-evaluate this.

A friend of mine was the victim of a road side bomb in Iraq and suffered a traumatic brain injury. He has thankfully fully recovered and now runs a foundation for injured warriors –  a foundation that has raised and has invested over $20 million (yes million) to benefit our warriors returning home. This is an amazing feat. I am sure he was involved with many other charities before the accident – but now he and his family are passionate about this cause. They were personally touched by it.

Another friend of ours, Stephanie, lost her son to a drug overdose. The family spent tens of thousands of dollars sending him to rehab facilities, sending him to the best doctors and trying everything to help their little boy. Unfortunately none of these facilities were prepared to deal with a teen with co-occurring disorders. This is where the a person has a psychological disorder (ADD, ADHD, Addictive personality, etc), as well as a drug dependency.  Hence co-occurring issues. There is no real government position on this, the doctors are ill-equipt to properly help these children, and the medical/rehab facilities are at a total loss. Stephanie now spends countless hours every day and every week educating others, giving talks, raising money, and she even finds time to talk to other parents who children are going through this to give them advice and support. She is an amazing person who has found a cause that will help so many others families deal with this disease. She knows, and we all know, that what she is doing may prevent other families from facing the tragedy that she and her family has to deal with for the rest of their lives.

Tragically, Debbie’s son was struck and killed by a NYC transit bus while he was  standing on the curb waiting to cross the street. He was just standing and waiting when his life was cut short by a bus driver – one who should not have even been on the road. Since that horrific day, Debbie has been relentlessly working for NYC Safer Streets and was a major force in reducing the New York City speed limit to safer 25 MPH.  Her volunteer work with Safer Streets will save many mothers, fathers and families from receiving that terrible phone call that she and her husband received a few years ago. I am sure her work is not done yet. Although the speed limit has been reduced, there is so much more to do, and so much more that I am sure Debbie will do, to prevent the senseless deaths caused by motorists each and every day.

For Dorothy, Nicole and I, we are not trying to save someone’s life, or help our returning warriors, or make people drive safer. There are so many other people who have undertaken these worthy causes.  We have a different passion, that’s all. A passion that Andrew started many years ago. We are trying to help underprivileged children. We are trying to positively change their lives and help them be part of the team – whatever team that is for them.  We are trying to make sure that kids who want to play sports are given that opportunity. For those kids who want to play a sport but can not afford the equipment or the special clothes or the cost of a mouth guard, we want to make sure they can still participate. We don’t want to see children not play soccer because they cannot afford sneakers, or not play hockey because their stick is broken, or lack a baseball glove or lacrosse stick.

So many grieving parents that I see have taken up a cause. Many other people who have been profoundly effected by some tragedy have taken up a cause. And these causes are all worthy.

But why does it take this grief to make someone want to help others so much? Of course there are people who work just as hard at their cause who have not lost someone, or who have not been profoundly effected. They do it because they love it and they want to do it.

Nicole’s first high schools motto is “Not for Self, but for Service.”  Nothing about learning, or making money, or getting ahead in life – but service to others. I think that is great.

The  point of this entry? Get involved. Find something that you want to do. Don’t sit back and let the opportunity to help others pass you by. Talk to your friends and ask them what they do. Find something that makes you tear up or you can make a connection to. Help at a food bank (on a day other than Thanksgiving), walk dogs at a local shelter, help socialize stray cats at a cat rescue, collect coats for the homeless, help set up computers or build homes for returning vets. But do something. Get out of your chair and step up to life. Don’t rely on others to do it.

If someone was not passionate about breast cancer and started to raise money for research, do you thing the survival rate from breast cancer would be in the nineties?  If someone was not so passionate about not throwing away food every night, would City Harvest save some 136,000 pounds of food each and every day? And there are dozens of other examples of people getting involved to help others.

Don’t sit on the sidelines and let the opportunity to get that feeling of helping others pass you by. Sit up, take responsibility, get involved – it will change your life.

 

Regrets of what Andrew missed out on…

I am sitting here on my flight from NY to Phoenix in row 7, just a few rows behind that infamous opaque curtain that covers the elite first class. I gaze up there where they get to eat Caesar salad, herb steak, and cheesecake for lunch, while I munch on the chicken I took from home and a bag of grapes I am traveling with. I don’t mind it. I have been upgraded to first class a few times, and while it was enjoyable, I don’t miss it.

Andrew in cockpitWhat does come to mind is a regret. I see the people up there smiling, sitting comfortably in their wide seats, and getting pampered by stewardesses that are actually nice. It bothers me that Andrew will never have that experience. It bothers me that my son will never have the chance to be one of those who are pampered in first class. I know he would have enjoyed it.

What else has he been cheated out of? What else do I think about that he never got to do or see? Where didn’t he get to go? What did he forever miss?

He never got to Israel or Italy – and I know he wanted to go to those places. I know he wanted to go with Todd and Jeff to Israel – he talked to Jeff often about going with him one day. He wanted to see what so many people had so much faith in. He talked about going to Italy with Dorothy and Nicole – he wanted to see Bonefro, where Grandma is from, and share in her memories of her times there. He never got to go to either place.

He loved snowboarding. He went every chance he had when he was at school. He went to Vail more times in three years than most skiers go in a lifetime. He boarding every mountain there as well as the back bowl – where only the most skilled boarders dare to go. He loved Vail, and I got to experience it with him many times as well – it is some of my best memories with him in the recent years – especially the times Nicole went with us. When we were there he talked about going boarding in the summer up in Canada. He talked about going boarding in Italy and the Alps, maybe being dropped at the top of a mountain from a helicopter. Again, these are things he never got to experience – he only got dream about them. And those dreams are gone now.

As we all know, he loved to drive. He loved to drive his Jetta and absolutely loved to drive his six speed RX-8. Windows down, sunroof open, stereo wailing away, wearing his cool Ray Bans and his ski cap. He would have Eminem or some rap artist playing, but not too loud – he liked to hear the motor running and the sound the tires made against the pavement. Thanks to one of my closest friends, Andrew also got to experience driving an amazing Porsche. What a smile he had and exhilaration he felt. In that instant he knew he wanted one. He could feel that was in his future. All of a sudden he had a goal he wanted to achieve. We also talked about going to driving school in CT together – where they teach performance driving – emergency handling, high speed turns, handling spin outs, learning how to corner better and to really take advantage of what his Mazda could do.  But once again, he was cheated. We both were.

We were also supposed to play in an adult hockey league his last summer. But his broken hand prevented that. It took away our father and son time – it cheated us both. Luckily we did play in a few games together the prior summer, and I will cherish those memories. Andrew said I was too slow on the ice, and I couldn’t shoot – like I needed my son to tell me that. He said if I stand in front of the net, he would pass me the puck so I could score. I am not sure if that worked or not, but at least he tried. I see so many other dads from my adult league playing hockey with their kids, and I know I am being cheated out of that. I see the pictures of them together on Facebook, huge proud smiles on their faces. And I will miss that. Maybe Nicole will let me play on her team one day.

CCI10062014_00003

Making ice cream at the Farm

I look in his room at what he did have. Bracelets he made at the farm. Wrist bands from the cruises we took. An armrest from his high school auditorium. Some broken hockey sticks, trophies too many to count, and I smile at those things. I smile at what is there, what he left behind of his experiences.

 

 

IF

Playing shuffleboard at the farm

I know he loved going to the farm. He had such good farm friends that meant so much to him. He kept everything he ever made at the farm to remind him of the good time. This past summer, our farm friends made Dorothy and me a scrapbook of pictures of Andrew, and notes from those who knew him at the farm. It means so much to us to have that scrapbook. We know how long it must have taken them to make it, and we appreciate it, we look at it all the time.

He loved to spend time with his friends in town, by the woods, or in a parking lot nearby. Just hanging out. He would sit out there with the same people for hours and hours and talk about the same stuff over and over again – all the while with no shoes on. I guess the no shoes was an Andrew and Wally thing.

I see his paintball markers (guns). He had pods, and masks, and bags, and all the other accessories that he needed to play for hours. Back in school, he and a bunch of his friends would go to Park Lane, where there were dozens of unexplored acres and they would play all day. They would break for lunch and grandma was always glad to make something for him and his friends, or we would have pizza brought in, then back to the paint.

scan14

Some of our closest friends with us on a cruise

He also has the ticket board I wrote about before. How many kids his age go to experience The Who in concert – not once but twice.  We all go to see an unforgettable evening with Meatloaf in the front of a very small venue. He went to numerous Jets games, Rangers games, playoff games, World Series, NBA Finals, and so on. He was a certified Scuba diver at thirteen and we dove all over the Caribbean – together – especially with his sister and mother.

There are so many things to smile at in his room. I have to learn, as so many others have, to treasure what he did get to see and do, to treasure what he treasured, and to know he had a great life.

So I look up in first class, and I know he never got to experience that. But what he did experience was amazing. What Dorothy and I were able to give him during his lifetime makes us happy. Now I can close my eyes, take my nap, and know that for the few short years that I had him, I gave him whatever I could.